Skip to main content

Eating Like a Champ!

Lia has eaten SO good today!  She took 63 MLs during one of her feedings!!  They upped each feeding to 70 MLs, so she almost had her whole feeding orally!  Whatever she doesn't finish, they put in her tube.  I am so proud of her!  She takes a minute to get used to the bottle, but once she gets a good latch, you would've never known she was on a ventilator for over two weeks!  Yay Lia! Yay to OT for helping us with that!  I am doing two skimmed breastmilk feedings to 1 enfaport feeding.  As long as her chest x-rays remain clear (no chylus) we will eventually go to all skimmed milk. 

I am also happy to announce that Lia no longer has her head IV (or as we have dubbed it, 'the antler')!  It wasn't flushing correctly last night, and since she is no longer on any IV meds, they decided to just take it out!  We are keeping our fingers crossed that she won't need another IV.  Her poor arms, hands, neck, feet, and now head, look like a pin cushion and are really bruised!

As long as Lia's breathing slows down (which it has), and she keeps these good feedings up, we MIGHT get to come home next week!  I'm not getting my hopes up, but would love love love to go home.  I miss Jack so much!!

No more antler sticking out of my head!  Don't you just love those eyes?

Can you guess whats so special about this picture?  Ryan is holding Lia...by the door...Lia's chords don't reach to the door.  NO CHORDS!!  She was completely off monitors today and it was awesome!  We walked all around the room with her wherever we wanted!  She also spent some time out at the nurses station because the nurses love her.

Got this pic today from my father in law.  Jack looks like he's having a great time at Grandma and Grandpa's in Fairbank!

Jack and Grandpa planted a tree just for Jack!  How special!  We will always remember that tree for the time he lived with Grandma and Grandpa while Mommy and Daddy were 'fixing Lia's heart'.

Comments

Unknown said…
I read your blog every couple days and I think about you a lot and I don't even know you. I hope you get out of the hospital and get to go home soon with that beautiful little girl!! Love and Prayers to you and our family.
May 4, 2012 at 9:27 PM
Ashley Romereim said…
Ashley, she is absolutely beautiful! Stephanie and Christina were just going on and on about what a little beauty she is. I'm so glad to read this! So excited for you all! As always, thoughts and prayers are being sent your way!
May 4, 2012 at 11:38 PM
Beth Lang said…
Go Lia! That is a huge improvement in her feedings! I knew she was just holding out for the good stuff. Sounds like things are coming together and I will keep praying for more good news.
May 5, 2012 at 7:51 AM
Pam the Realtor said…
This is all such good news! So happy that the thoughts of going home are starting to happen. I am sure you will all be together again very soon.
May 5, 2012 at 11:58 AM
Post a Comment

Popular posts from this blog

Christmas List

Well....my mom and sister and other various family members have started asking what Ryan and I want for Christmas this year....so I began thinking, and here is my Christmas list thus far: *Dance Dance Revolution for Wii (Don't laugh, it's actually really fun) *Dancing With the Stars for Wii *Waffle Maker *good quality chef's knife *fun dress socks to wear to work *black boots with pointed toe *brown boots with pointed toe *Dressy winter coat *Wall Flower refills (for home and school) Ryan and I aren't shopping for each other this year since we are honeymooning over New Years. We are going to Las Vegas, and I can't wait!
1 comment
Read more

9 1/2 Hours

9 1/2 hours until my sweet baby girl goes in for her third open heart surgery.  This isn't just any surgery.  It's a big one.  This surgery would be a big deal for a 40 year old.  So you can imagine the seriousness and high risk on a 3 week old.  I am nauseous and scared.  I pray with all my heart that her little body can handle the intensity and recovery involved with something this big.  The nurses have prepared us for the worst, which I am thankful for, but am remaining optimistic and strong in faith.  They have told me that she will be VERY sick for several days following her surgery.  She may even come back to her room in the PICU still on bypass.  Even if she doesn't come back on bypass, she could still go back on it a few days later.  In addition to all her machines and medicines now, she will also come back with a pacemaker, and possibly the ECMO (bypass) machine. Lia opened her eyes today, and looked around the ...
13 comments
Read more

Praising God!!!

Lia has had a REALLY good 24 hours! She passed her carseat test! Has taken ALL her feedings orally! Feeding tube is OUT! Breathing treatments have been cancelled! Ryan and I have started a 24 hr PCS (parent care status) where we are completely in charge of all feedings and medications.  The nurse will only check on us periodically. This is done to make sure we will be able to handle everything at home. NO MONITORS!  I just walked into our bathroom with Lia...simply because I COULD! Pharmacy has come to talk to us about all her prescriptions, and how to administer all medications. Got a basket ready for all the 'skimming' supplies I'll need for home. Arrangements have been made for follow up care with cardiologist and pediatrician! Discharge, yes, I said it, DISCHARGE scheduled for Tuesday!  Ok, I'm crying now that I just typed that! Once again, thank you for all your continued support and prayer!  Don't we have an amazing God? These oral feedings r...
12 comments
Read more